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SONG Study

17th of September, 2018

 

JOIN THE SONG-KIDS DELPHI PANEL!

The Standardized Outcomes in Nephrology – Kids (SONG-Kids) is an international initiative that aims to identify outcomes that are important to children and adolescents with chronic kidney disease, their caregivers and families, clinicians, and other health professionals. This will inform the development of a core outcome set to be reported in all clinical trials (and other research) in children with chronic kidney disease (all stages), and ensure that trials report outcomes that are important and relevant for decision-making.

You are invited to participate in the SONG-Kids Delphi panel to achieve consensus (agreement) on the most important outcomes that should be included in the core outcome set for kidney disease. This involves completing a Delphi survey, which includes completing three rounds and each survey should take approximately 10 - 15 minutes to complete. Round 1 is planned to close end-September/October 2018. All participants will receive a copy of the results. To join the SONG-Kids Delphi Panel, you can find the survey at: 

http://songinitiative.org/projects/song-kids/

Feel free to forward this invitation to anyone else who may be interested.

Thank you!

SONG-Kids Steering Group 

 

Are you at risk of kidney disease

16th of August, 2018

Are you at Risk?

 

Latest newsletter

7th of May, 2018

Spring 2018 newsletter

 

Nephrology Scientific Research meeting

17th of April, 2018

From the Laboratory to the Clinic

 

Progress on Deceased organ donor strategy

29th of January, 2018

https://www.health.govt.nz/our-work/hospitals-and-specialist-care/organ-donation-and-transplantation

 

Media release - Compensation for live donors

4th of December, 2017

KHNZ thrilled with Compensation for Live Donors 

Ministry of Health Press Release

 

Compensation for Live Donors

4th of December, 2017

http://www.radionz.co.nz/news/national/345355/organ-donor-i-will-receive-100-percent-of-my-loss-of-earnings

 

New Zealanders at increased risk of kidney failure due to medicine triple whammy - see link below

6th of November, 2017

https://www.stuff.co.nz/national/health/98571754/new-zealanders-at-risk-of-kidney-failure-with-medicinal-triple-whammy

 

Medication survey

6th of November, 2017

 

“Living with Medicines” in New Zealand

As part of her Honours degree, Charlotte Brenkley, a final-year Pharmacy student at the University of Otago wants to explore New Zealander’s experiences of taking their daily, long-term medicines.

She is looking for people 18 years of age and over who have been taking at least one prescription medicine regularly for at least 3 months for their health conditions.

She would love you to complete the Living with Medicines Questionnaire, a tick-box questionnaire which can be completed in about 10 minutes.

Please click here http://tinyurl.com/LWMwebfor links to information on the project and the questionnaire.

 

31st of October, 2017

Annual Report