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Invitation

2nd of October, 2017

 

 

 

INVITATION TO JOIN THE SONG-PD DELPHI PANEL!

The Standardized Outcomes in Nephrology – Peritoneal Dialysis (SONG-PD) is an international initiative that aims to identify which outcomes in peritoneal dialysis are important to patients, caregivers, clinicians and other health professionals. This will inform the development of a core outcome set to be reported in all clinical trials (and other research) in peritoneal dialysis.

Establishing a core outcome set can help to ensure that trials report outcomes that are important and relevant to you.

You are invited to participate in the SONG-PD Delphi panel to achieve consensus (agreement) on the most important outcomes that should be included in the core outcome set for peritoneal dialysis. This involves completing a Delphi survey, which includes three rounds from August to December 2017 and each survey should take approximately 10 - 15 minutes to complete.

 Round 1 is now open until 31st October 2017. All participants will receive a copy of the results.

 To join the SONG-PD Delphi Panel, please register your email at:

 http://songinitiative.org/projects/song-pd/

 Feel free to forward this invitation to anyone else who may be interested.

 Thank you!

 SONG-PD Steering Group


SONG-PD Steering Group| David Johnson (Chair), Angela Wang, Edwina Brown, Gillian Brunier, Jeffrey Perl, Jie Dong, Martin Wilkie, Rajnish Mehrotra, Roberto Pecoits-Filho, Sarala Naicker, Sue-Ann Dunning, Tony Dunning, Karine Manera (Project Coordinator)

SONG Executive Committee | Jonathan Craig (Chair), Angela Wang, Braden Manns, Brenda Hemmelgarn, David Wheeler, John Gill, Peter Tugwell, Roberto Pecoits-Filho, Sally Crowe, Tess Harris, Wim Van Biesen, Wolfgang Winkelmayer, Allison Tong

Please see the website for members of the Steering Groups (SONG-HD, SONG-Tx, SONG-PKD, SONG-Kids), Expert Working Groups, and Investigators.

w: www.songinitiative.org | e: contactus@songinitiative.org | p: +612 9845 1467 | t: @song_initiative

 

Spring Newsletter

18th of September, 2017

Spring Newsletter

 

Follow us on Twitter

12th of September, 2017

https://twitter.com/intent/follow?original_referer=https%3A%2F%2Fpublish.twitter.com%2F&ref_src=twsrc%5Etfw&region=follow_link&screen_name=KidneyNz&tw_p=followbutton

 

2017 KHNZ Manifesto

21st of August, 2017

2017 Kidney Health New Zealand Manifesto

 

KHNZ responds to just launched Deceased Donor Strategy

4th of July, 2017

https://www.odt.co.nz/news/national/faults-found-organ-donation-plan

 

KHNZ media release

3rd of July, 2017

 

MEDIA RELEASE

 DECEASED ORGAN DONATION STRATEGY DOESN’T GO FAR ENOUGH

The Deceased Organ Donation Strategy launched by the Minister of Health today is good as far as it goes – but it doesn’t go anywhere near far enough, according to Kidney Health New Zealand chief executive Max Reid.

“Kidney Health New Zealand was happy to have a hand in developing the Strategy, but what the Minister has announced today lacks the commitment required to resourcing the Strategy’s implementation,” Mr Reid says.

“It is encouraging to see signs that our deceased organ donation rate has been beginning to increase over the past couple of years, but it is still one of the lowest in the developed world. And that is not good news for the nearly 700 New Zealanders with end stage kidney disease on a growing transplant waiting list.  Having a national strategy specifically designed to increase deceased organ donation rates offers a real opportunity to bring about a much needed change – particularly in terms of raising public awareness around deceased organ donation and its importance.

“To say ‘the devil is in the detail’ is perhaps an over-used phrase. But in this case it’s true. While the fundamental priorities identified in the Strategy are sound – strengthening the existing register, strengthening practice and capacity in Intensive Care Units, developing a public awareness campaign and establishing a new national body – there is no implementation plan, no indication of how or where or when the proposed national agency will be established, and no overarching timeframe.

“Of equal concern is the lack of any credible funding commitment on the Minister’s part. New Zealand’s ICUs are already running at capacity. The Strategy identifies increasing that capacity in order to better manage deceased organ donation as foundational. That the Minister has only allocated $500,000 towards building that capacity is incomprehensible. Clearly the Ministry of Health has not costed the actual level of funding required – and that lack of analysis to support the Strategy is itself of concern.

“Kidney Health New Zealand calls on the Government to establish the new national agency as a matter of urgency, so that a detailed implementation plan can be developed, costed and appropriately funded. Anything less would be to undermine the clear potential of the Strategy, and represent a betrayal of the hundreds of New Zealanders whose lives depend upon an increase in deceased organ donation and transplantation,” says Mr Reid.  

For further information, questions or comment, please contact:

Max Reid, Chief Executive Officer, Kidney Health NZ – ph. 021 72 33 44

 

Kidney Health NZ (formally the Kidney Foundation) is a national organisation supporting kidney patients and their families by way of education, advocacy and research across all areas of kidney health - including organ donation and transplant, dialysis, early detection and prevention of chronic kidney disease. For further information or advice, contact the Kidney Health Helpline – 0800 KIDNEYS (543 639)

 

 

 

Home dialysis conference 2018

26th of June, 2017

For further information visit http://www.homedialysis2018.org/

 

 

Nick Cross talks about organ donation

3rd of March, 2017

https://www.facebook.com/lynchinnz/videos/708306532681650/